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by Laina

RIP Annette Funicello

April 9, 2013 in blogs, Multiple Sclerosis, The MS Project

When my mom was diagnosed with MS the only two public figures who has come out about the disease at that time were Richard Pryor and Annette Funicello. My mom identified more closely with Annette on a personal level. Being same age, gender, and having that wholesome fifties thing going on. She felt some comfort in the fact that someone like Annette had the same dreaded disease she had.

I was sad the last few years watching Annette’s decline and while I feel for the loss her family and loved ones are feeling with her passing I am happy to know she is in a better place and maybe my mohter will fin

 

 

http://www.cnn.com/2013/04/08/opinion/leydon-annette-funicello/?hpt=us_c2

http://www.npr.org/2013/04/09/176640353/annette-funicello-dies-at-70

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The MS Project volume 3

November 15, 2012 in books, Multiple Sclerosis, The MS Project, Uncategorized

Thank you so much for your interest in being a part of Orange is the new pink – raising awareness for Multiple Sclerosis.

In 2011 & 2012 we put out a compilation of stories by people with MS about their journey with the disease. Volume 1 came out on paperback and an ebook. Due to cost Volume 2 only came out in ebook form. We are excited to announce that Volume 1 will be available on audio at the beginning of December!!!!!

We are now ready to start compilation for volume 3!!!! Due our March 2013!

The premise of the book will be the same. The book is meant to educate, inform, and inspire.

If you feel you have a great story to share see below for what I need for you.

• Your story (can be of any length)
- please format in Times New Roman 12pt font
- double spaced
- indent paragraphs 5 spaces
• Brief bio
• Headshot (for website)

Submissions should be emailed to [email protected] by Feb. 28th, 2013.

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July 14, 2012 in Uncategorized

Life is like a game of cards. The hand that is dealt you represents determinism; the way you play it is free will.
Jawaharal Nehru

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Jack Osbourne on MS diagnosis: Adapt and overcome

June 26, 2012 in Uncategorized

Read the full original post here.

New father Jack Osbourne has been hit with devastating news just as he’s easing into parenthood.

The 26-year-old son of rock legend Ozzy Osbourne, who welcomed daughter Pearl in April, was diagnosed with multiple sclerosis just a few weeks after Pearl’s birth, as he reveals in a new interview with Hello! magazine.

 

“The timing was so bad,” Jack told the magazine. “I’d just had a baby, work was going great … I kept thinking, ‘Why now?’”

Multiple sclerosis is an autoimmune disease that affects the brain and spinal cord, and according to Hello!, it was an episode in which Jack lost most of the vision in his right eye that led him to seek treatment. The diagnosis has his parents questioning how this could happen, with his mother Sharon wondering if it could be attributed to something she did during pregnancy.

 

Read the full original post here.

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Celebrate World MS Day

May 30, 2012 in blogs, Multiple Sclerosis, The MS Project

The MS Project

 

The MS Project is a collection of things created to raise awareness for Multiple Sclerosis. Consisting of a book, a website, apparel, and an iPhone app these elements work together to bring more attention to the disease, teach people, and create a strong community.

 

The book – Volume 1 was released in March, 2011 and Volume 2 was released March 2012. The books are a collection of stories written by people afflicted by Multiple Sclerosis, or who have loved ones afflicted. This book is meant to be informational regarding the disease as experienced by real people and to showcase the amazing strength people find when facing adversity.

 

The iPhone app – is a tool to create awareness for Multiple Sclerosis. Connected to The MS Project website the app will include a feed from the blog to provide access to the MS community and a wealth of knowledge.

 

The website – is a social networking site where people passionate about raising awareness for the disease can become members and get to know one another. The goal is to create a community to provide support, awareness, and motivation to people within and outside the community. You can currently access the website at http://www.themsproject.com.

 

The MS Project, the book, Volumes 1 & 2, are now available for – purchase on Amazon. Volume 1 Volume 2.

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Living Well With MS & Disabilities: Ellie’s Blog

May 29, 2012 in blogs, Multiple Sclerosis

Another great blog I came across. Read here.

 

WHY BULLY A PERSON WITH A DISABILITY

 

Or why bully anyone at all. I’ve never understood why some people belittle or bully other people. But when they do it to a person with a disability to me it’s beyond being mean it’s cruel.There was a recent article “Children With Autism Are Often Targeted By Bullies ” in NPR recently . http://www.npr.org/blogs/health/2012/04/23/151037898/children-with-autism-are-often-targeted-by-bullies?ft=3&f=111787346&sc=nl&cc=es-20120429

This article is about a personal experience of a child with Autism who wanted to make friends. But all she found in return to her overtures to be friendly was to be bullied back. Her concerned mom pulled her out of the school, quit her job and home schooled her for two years. Then concerned about her daughters socialization needs placed in a school for kids with autism. And it’s been a successful fit. Her daughter is happy and making friends.

 

Read full post here.

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Earth Laughs in Flowers

May 26, 2012 in blogs, Multiple Sclerosis

This was a fun blog I came across. Please check it out here.

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The Five Worst Things I Have Done Since Being Diagnosed with MS by Marie Cooper

May 25, 2012 in blogs, Multiple Sclerosis

I came across this amazing post. Please read full post here.
Although I am a relatively smart person, I can admit to having done some pretty dumb things in my life. A lot of the dumbest things came after finding out I had MS. I thought if I listed the top five, it might save someone from repeating my blunders.
MISTAKE # 1:  Not immediately making long-term financial plans.
I was eight weeks into a brand-new job in 2005 when I was hospitalized with transverse myelitis, which was followed by a diagnosis of MS. I should have looked into disability right away, even if I wasn’t ready. I should have learned everything I could have about it.
Instead, I went back to work way too soon and focused on keeping my job instead of maintaining my health.
Despite worsening symptoms that were seriously compromising my mobility and function, I kept pursuing a high-stress career that I was both good at and enjoyed. I ignored the handwriting on the wall regarding my own future.
After two frantic years of working 12-hour days, being on call 24/7, determined to prove that MS would not impact my performance, my position was eliminated and I was out of work. Before finding a new job had never been a problem. But things were complicated now.  I couldn’t “pass” any more. Now I needed assistive devices, a cane or a walker or more frequently, a wheelchair, to get around. Huge red flag for hiring managers, although, of course, there is almost no way to prove that.
read full post here.
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World MS Day 2012 – It’s almost time

May 18, 2012 in Multiple Sclerosis

World MS Day  is coming soon on Wednesday May 30th, 2012. If you’re not familiar please go check the site out and see how you can be one of the 1000 faces.

 

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Kiss Goodbye to MS

May 17, 2012 in Multiple Sclerosis

I came across this amazing site called Kiss Goodbye to MS. It’s an initiative based out of Australia that works with people to raise money to go towards MS research and services for people with MS.

They have some amazing things going on so I encourage you to check them out.

 

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